When a child is diagnosed with cystic fibrosis (CF), usually a couple of weeks after birth, it is a devastatingly sad and stressful time for the parents of the newborn. What they will learn is that: CF is a fatal, progressive disease; there is currently no cure; it requires intensive daily regimes of medication, special diet and physical therapy and many trips to specialists and hospital; it is the most common life-threatening genetic condition affecting Australians; respiratory failure is the major cause of death; and the average life expectancy is only 38 years. 

But they will also learn that in addition to the teams of health and medical experts that will now play a big part in their lives, there is an organisation, which exists solely to meet their needs and support them to help achieve optimal health outcomes for their child. 

Cystic Fibrosis Queensland (CFQ) exists to meet the needs of families affected by CF. CFQ provides practical and emotional support directly to families. It is also the linking agency between the person with CF; their family; the hospital and the community and is usually the first point of contact for families outside the medical profession, when a child is diagnosed.

CFQ is a not-for-profit charitable organization that provides counseling and support services to 850 Queenslanders affected by CF, and their families. Currently, CFQ receives only 6% Government funding and must raise the majority of the funds required to offer the essential support services.

When you are living with CF, every day matters.  For the Love of Life, means working together with our supporters to make each of those days the very best it can be.